Educational Materials, Resources & Support

The educational information provided on this web site is not intended to be a complete summary of the available literature and other public information about cancer. It is meant to provide one additional resource for readers. While written by a physician, this information is provided for basic informational purposes and is not intended to serve as medical advice. This information is not intended to substitute for your doctor and his/her opinion or medical care. If you have any symptoms listed on our educational material, please consult your doctor.
This material was reviewed either by an oncologist or psychologist, depending on the content.
Geoffrey Kim, M.D. reviewed the educational material pertaining to cancer causes, prevention, diagnosis and care. Dr. Kim is a medical oncologist and director of the Hematology-Oncology Safety Net Providers, which provides care for uninsured patients with cancer and hematologic conditions.

Ivan Croft, Ph.D. reviewed the educational material about how to speak to children about cancer. Dr. Croft is a Resource School Psychologist at Howard County Public Schools.

NATIONAL CANCER INFORMATION SITES

 

National Cancer Institute: National Cancer Institute: General treatment (e.g., clinical trials) info (part of NIH)

https://www.cancer.gov/

Telephone: 800-4-CANCER (1-800-422-6237)

Mail:

BG 9609 MSC 9760

9609 Medical Center Drive

Bethesda, MD 20892-9760
American Cancer Society: General info

http://www.cancer.org/

 

Web MD:

http://www.webmd.com/cancer/features/6-ways-to-conquer-ascary-diagnosis

 

Cancer.net:

http://www.cancer.net

 

Medical News Today (MNT)

http://www.medicalnewstoday.com/info/cancer-oncology

 

CancerCare: Online support  

http://www.cancercare.org

 

Caring Bridge: Sharing of photos, stories with family and friends (good place to set up network of support)

https://www.caringbridge.org

 

Livestrong: General info, support, services

http://www.livestrong.org

 

Patient Advocate Foundation: Resource to help negotiate bills, job status etc. Helps find resources to help pay (if insured) for health care bills

http://www.patientadvocate.org

 

 

 

MARYLAND CANCER INFORMATION SITES

 

Angel Foundation

https://mnangel.org/get-help/resources/resourcelist

 

HopeWell Cancer Support: General support

http://www.hopewellcancersupport.org

 

Maryland Department of Health and Hygiene

http://phpa.dhmh.maryland.gov/cancer

 

 

CANCER CENTERS IN MARYLAND/HOWARD COUNTY

 

Johns Hopkins Hospital Sidney Kimmel Comprehensive Cancer Center

http://www.hopkinsmedicine.org/kimmel_cancer_center/patient_information

 

 

Howard County General Hospital

Claudia Mayer / Tina Broccolino Cancer Resource Center

http://www.hopkinsmedicine.org/howard_county_general_hospital/services/cancer/claudia_mayer_cancer_resource_center

 

 

HELP FOR CHILDREN WHEN A PARENT HAS CANCER:

 

American Cancer Society: Helping Children When a Family Member Has Cancer: Dealing With Treatment

http://www.cancer.org/treatment/childrenandcancer/helpingchildrenwhenafamilymemberhascancer/dealingwithdiagnosis/dealing-with-diagnosis-how-to-tell-children

 

Cancercare for Kids:

Toll-free number: 1-800-813-4673

http://www.cancercare.org/tagged/children

 

Cancer Really Sucks:

http://cancerreallysucks.org/

 

Kidscope:

http://www.kidscope.org/

 

Kids Konnected:

Toll-free number: 1-800-899-2866

http://kidskonnected.org/

 

National Cancer Institute:

https://www.cancer.gov/

 

National Children’s Cancer Society:

https://thenccs.org/

 

Super Sibs!:

https://www.alexslemonade.org/campaign/supersibs

 

 

HELP FOR CARGIVERS:

 

Dr Larry Lachman

Caring For The Caregiver After Death

http://www.drlarrylachman.com/people/caring-for-the-caregiver.php

 

Family Caregiver Alliance

Grief and Loss

https://www.caregiver.org/grief-and-loss

 

 

PALLIATIVE CARE

 

National Consensus Project for Quality Palliative Care (2013):

https://www.hpna.org/multimedia/NCP_Clinical_Practice_Guidelines_3rd_Edition.pdf

www.nationalconsensusproject.org

 

Center to Advance Palliative Care (List of Palliative Care Providers):

http://www.getpalliativecare.org/providers

 

Cancer.net:

http://www.cancer.net/navigating-cancer-care/how-cancer-treated/palliative-care/caring-symptoms-cancer-and-its-treatment

 

American Cancer Society:

http://www.cancer.org/treatment/treatmentsandsideeffects/palliativecare/index

 

National Cancer Institute:

https://www.cancer.gov/about-cancer/advanced-cancer/care-choices/palliative-care-fact-sheet

 

 

CANCER STATISTICS IN MARYLAND/HOWARD COUNTY

 

Howard County (Maryland) Health Department

http://www.howardcountymd.gov/Departments

Maryland Department of Health and Hygiene

http://phpa.dhmh.maryland.gov/cancer/SitePages/surv_data-reports.aspx

Center for Disease Control and Prevention

http://www.cdc.gov/cancer/dcpc/data/state.htm

SUPPORT PROGRAMS IN VIRGINIA

 

Full Circle Grief Center
Mission/Description: “Our mission is to provide comprehensive, professional grief support for children, families, and communities in Central Virginia.”
Contact Information:
Allison Schooley
allisonschooley@fullcirclegc.org

10611 Patterson Ave., Building 201
Richmond, VA   23238
(804) 912-2947
http://www.fullcirclegc.org 

 

 Jewish Family Service/Dozoretz Center for Family Healing
Mission/Description: “Specialized grief counseling services for children, teens, and their families. Collaboration/partnership with free local children and teen grief support groups: “Peace by Piece”. Services are available to persons of all ages, races, religions, and economic situations.”

Contact Information:
5000 Corporate Woods Dr. Suite 400
Virginia Beach, VA 23462
(757) 459-4640
http://www.jfshamptonroads.org

 

KIDZ’NGRIEF
Mission/Description: “KIDZ’NGRIEF is a Dougy Center modeled program for grieving children and teens that meets twice monthly and runs 10 groups each night. We also run an annual grief camp for kids (Mikey’s Camp) in November. Our program offers servives to 3-24 year olds as well as to parents/guardians who bring them. We are sponsored by the Bon Secours Hampton Roads Bereavement Center.”

Contact Information:
716 Denbigh Blvd., Ste. B3
Newport News, Virginia 23602
(757) 737-2287
http://www.bonsecourshamptonroads.com/our-services-hospice-bereavement-s…

 

TAPS (Tragedy Assistance Program for Survivors)
Mission/Description: “TAPS is the national organization providing compassionate care for the families of America’s fallen military heroes. TAPS provides peer-based emotional support, grief and trauma resources, grief seminars for adults, Good Grief Camps for children, connections to community-based care, case work assistance and a 24/7 resource and information helpline for all who have been affected by a death in the Armed Forces. Services are provided free of charge.”

3033 Wilson Boulevard
Arlington, VA 22201
(202) 457-8277
(800) 959-TAPS (8277)
http://www.taps.org

 

Hospice of the Piedmont
Mission/Description: “Through the Journeys programHospice of the Piedmont supports children and teens, ages 4 to 18, and their parents who are affected by the serious illness or the death of a loved one.  Throughout the year, grief support groups are facilitated by a bereavement counselor and art therapists.”

Contact Information:
675 Peter Jefferson Parkway, Suite 300
Charlottesville, VA 22911
(434)817-6900
www.hopva.org

 

Community Grief and Loss Center
Contact Information:
Family Service of Roanoke Valley
360 Campbell Ave.
Roanoke, VA 24016
(540) 563-5316
http://www.fsrv.org

 

Kids’ Haven: A Center for Grieving Children
Contact Information:
325 12th Street
Lynchburg, VA 24504
(434) 845-4072
http://www.kidshavenlynchburg.org

 

Good Samaritan Hospice
Contact Information:
3825 Electric Road, Suite A
Roanoke, VA 24018
(540) 776-0198
http://goodsamaritanhospice.org

 

Grief Resource Center
Contact Information:
3932 Springfield Road
Glen Allen, VA 23060
(804) 360-2884

 

Fairfax County Mental Health
Contact Information:
8348 Traford Lane, Suite 400
Springfield, VA 22152
(703) 866-2119
 

Sibling Program
Mission/Description: “The Sibling Program, offered by the Grace Oughton Cancer Foundation (GOCF), is available to children and teens ages 6 through 18 who have been impacted by the death of a sibling, or have a sibling coping with a chronic illness.  Components of the program consist of peer-oriented support groups and recreational outings.”

Contact Information:
Grace Oughton Cancer Foundation
1329 Alum Springs Road, Suite 102
Fredericksburg, VA 22401
888-900-4623
http://www.thegocf.org

 

SUPPORT PROGRAMS IN MARYLAND

 

Hospice Caring, Inc.
Contact Information:
518 South Frederick Avenue
Gaithersburg, MD  20877
(301) 869-4673
http://www.hospicecaring.org
Hospice Caring, Inc.

 

 Roberta’s House
Mission/Description: “Roberta’s House Family Grief Support Center provides comprehensive grief support programs for children 5 yrs- 17 yrs and adults.  Programs consist of closed peer support groups for Families with Children, Homicide Survivors, Adult Peer Support, Mothers who have experienced PreNatal/Infant Loss and Teen Support Groups. We also have a Homicide Survivor Advocacy Program that provides emotional, mental, physical and spiritual support to survivors as they work through the criminal justice system.  Our community outreach consist of educational seminars, professional workshops and volunteer trainings for the community.” 

Contact Information:
1900 N. Broadway
Baltimore, MD  21213
(410) 235-6633
http://www.robertashouse.org

 

In-School Bereavement Program
Contact Information:
Northern Chesapeake Hospice Foundation
P.O. Box 2332
Elkton, MD 21922
(410) 392-0254
http://www.nchfoundation.org
http://secure.nchfoundation.org/t/Programs

 

A LEGACY Left Behind, Inc.
Contact Information:
P.O. Box 293
Glenn Dale, Maryland 20769
(301) 938-5752
http://www.alegacyleftbehind.org

 

Montgomery Hospice
Contact Information:
1355 Piccard Drive, Suite 100
Rockville, MD 20850
(301) 921-4400
http://montgomeryhospice.org

 

 Stella Maris
Contact Information:
2300 Dulaney Valley Road
Timonium, MD 21093
(410) 560-9680 toll-free
http://stellamarisinc.com

 

Teens Learning to Grieve
Contact Information:
2914 East Joppa Road, Suite 204
Baltimore, MD 21234
(410) 668-0324 toll-free

 

Hospice of the Chesapeake
Contact Information:
445 Defense Highway
Annapolis, MD 21401
(800) 745-6132
http://hospicechesapeake.org

 

Carroll Hospice:  Healing Hearts Support Group
Contact Information:
95 Carroll Street
Westminster, MD 21157
(410) 876-8044
http://carrollhospitalcenter.org

 

Hospice of Charles County
Contact Information:
PO Box 1703
LaPlata, MD 20646
(301) 934-1268

 

Calvert Hospice
Contact Information:
P.O. Box 838
Prince Frederic, MD 20678
(410) 535-0892
http://calverthospice.org

 

Hospice of Frederick County
Contact Information:
P.O. Box 1799
Frederick, MD 21702
(240) 566-3030
http://www.hospiceoffrederickco.com

 

Chesapeake Life Center; Hospice of the Chesapeake
Contact Information:
90 Ritchie Hwy.
Pasadena, MD 21122
(410) 987-2129
http://www.chesapeakelifecenter.org
Amy Stapleton    astapleton@chesapeakelifecenter.org

 

 

CAMPS

 The Moyer Foundation (Camp Erin)
Mission/Description: “The mission of The Moyer Foundation is to provide comfort, hope and healing to children and families affected by grief and addiction. Camp Erin, created and funded by The Moyer Foundation, is a nationwide network of free bereavement camps for children and teens ages 6-17 who have experienced the death of someone close to them. It is a weekend-long experience filled with traditional fun camp activities combined with grief education and emotional support—facilitated by grief professionals and trained volunteers.

The Moyer Foundation is dedicated to energizing new research and inspiring political advocacy that will lead to higher standards of care and positive outcomes for children in the fields of bereavement and addiction prevention. By raising awareness for these issues, The Moyer Foundation reduces stigmas, improves understanding, and makes healing possible for children in need.”

Contact Information:
Phone: 206-298-1217(main office)
267-687-7724
http://www.moyerfoundation.org/programs/camperin.aspx
https://moyerfoundation.org/camps-programs/camp-erin/

 

Camp Hope-A Safe Environment for Grieving Kids and Teens
Mission/Description: “Camp Hope is a free weekend camp for children ages 6 to 16 who have experienced loss of a significant loved one. Attending Camp Hope is about sharing memories, expressing feelings, trying new activities, and learning that one is never alone in their grief.”

Contact Information:
Lynn Hebert & Leslie Wilson at: info@camphopeca.com
www.camphopeca.com

 

Camp Good Grief
Mission/Description: “Camp Good Grief is a three-day camp experience for children 10-16 years old who have had a sibling or parent die. Camp activities includes: grief activities, camp fire fun, group games, art activity and more. Zero cost.”

Contact Information:
Dorothy Brooks, Camp Director: (909) 558-4073
1(800) 825-KIDS
http://lomalindahealth.org/childrens-hospital/our-services/outreach-services/camp-good-grief.page

 

Camp Hands of Hope
Mission/Description: “Camp is open to children and youth ages 5-18 who have experienced the loss of a loved one in the past 3 years.”

Contact Information:
http://www.camphandsofhope.org/

 

Experience Camps
Mission/Description: “Experience Camps are one-week camps for boys and girls who have experienced the death of a parent, sibling or primary caregiver.  It’s a place where kids can laugh, cry, play, create, remember the person who died, or forget the grief that weighs them down.  It’s a place where they can feel “normal”, because everyone there has been through something similar and understands what it’s like to lose someone important to them. It’s a home away from home. And just about everyone will tell you…”It’s the best week of the year”.”

Contact Information:
P.O. Box 5099
Westport, CT 06881
860-850-0379
Info@ experience.camp
Fax: 203-286-2886
http://www.experience.camp/

 

Comfort Zone Camp
Mission/Description: “Comfort Zone Camp is the nation’s largest bereavement camp. Comfort Zone Camps are offered free of charge to children ages 7-17 who have experienced the death of a parent, sibling or primary caregiver. The camps are held year-round in California, Massachusetts, New Jersey and Virginia.  Comfort Zone Camps create an environment where grieving children can have fun and break the isolation death often brings, while learning valuable coping skills for their daily lives.  Comfort Zone also hosts grief support groups for adults and children throughout the year, providing a network of support for the whole family.”

Contact Information:
6606 West Broad Street, Suite 401
Richmond, VA 23230
(804) 282-2192 Ext. 204
http://www.comfortzonecamp.org

 

Camp Kesem
Mission/Description: “Kesem is a nationwide community, driven by passionate college student leaders, that supports children through and beyond their parent’s cancer. We are the largest national organization dedicated to this unique population – supporting children with innovative, fun-filled programs that foster a lasting community. Kesem provides training, support and leadership development to more than 3,000 passionate college student leaders from coast-to-coast who volunteer year-round to create, manage and run Camp Kesem’s life-changing programs in their communities.”

Contact Information:
PO Box 452
Culver City, CA 90232
(260) 225-3736 / (260) 22-KESEM
http://campkesem.org/